Happy new year! It truly is a privilege to say we got another year out of life.Just one year ago I was so sick I wasn’t sure I would make it. Even the doc said that I was close. But I survived and I’m doing well for which I am thankful. Thankful for the doc, nurses, meds, my wife, and the amazing group of friends who surround me and keep me upright. I’m thankful for this amazing community that keeps me motivated and moving forward. Thank you all, I love you all, and wish you all a very Happy, Healthy New Year!!
It sounds like you have a good crew over there taking care of you and they have your back. That's priceless. It takes a village. The nurses, doctors, radiologists, technicians, IT, insurance people, admin staff... you can't do it without them.Well I’ve been a little quiet as of late but I’ve been busy.
First of all, at my last session 2 weeks ago they did a test on my blood to see what my CEA numbers (tumor markers) were and the results kind of floored me….they went up.😞 I was really hoping they would continue to drop as they had been but noooo. Good news is it was only a 22 point increase which no one at the lab is concerned about. So I’m back at it today.
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One of my hero’s at the lab (Kris) is a cyclist, road biker, and I was telling her about the Big C ride and she was all into it. I will get my wife’s bike dialed in for Kris. It would mean so much if she came and rode with us.
I know I say this often, but I love the people who care for me at the lab. It takes a certain person who can deal with the pain and misery and not let it affect the way they treat you. Today, on of the office employees came by to visit me. Amanda helped me with financial stuff in the past and still seems to have my back now. One of my drugs costs $1,100.00 per session and she applied for assistance with the manufacturer and got it!! Zero cost to me!!!!
I super grateful to all those around me, the amount of love is overwhelming and I just don’t feel like i deserve it….but I’ll take it.
Now back to the roller coaster!
It won’t be the only one. We all need each other so I plan to do more.It sounds like you have a good crew over there taking care of you and they have your back. That's priceless. It takes a village. The nurses, doctors, radiologists, technicians, IT, insurance people, admin staff... you can't do it without them.
It sucks I can't make the ride. It sounds like it'll be a good time with good people.
Cool. I was hoping it would be an ongoing thing. 🚴It won’t be the only one. We all need each other so I plan to do more.
We will make it soCool. I was hoping it would be an ongoing thing. 🚴
…the amount of love is overwhelming and I just don’t feel like i deserve it….
Great news Frank!!!Well I guess the awesome vibe from the Big C ride carried me through another CEA report….tumor markers are trending down!!!!!!!! It is not a huge jump as they have been but I expect as I go on this might be the norm. 1818 last month to 1632 is a good decline, at least I think so. So now I can breathe a little and keep pushing forward. It’s hard and so damn emotional but throwing my shit feelings down on this blog helps, so thank you for bearing with me. Yesterday I was so damn nervous, especially when I saw the doc approach me in the Lab. He did start out by saying he wished he had known about the Big C ride as he would have attended….that’s pretty amazing. Imagine if he would have seen first hand, how many people rode for friends and relatives!!! So anyway as soon as he approached me Kris run right up behind him….she had my back in case there was bad news. I guess now you can understand why I was so excited when she wanted to attend. But luckily the doc said I look good, my blood is good and now I know this stuff is working. He also said that he thinks my riding has a lot to do with my good trends, so I have another excuse to ride my bike. I wonder if I can deduct my bikes as a health expense??? Lol
Well I’m happy that this was a good week on my roller coaster of life. Now to plan a little farther into my future!!!
That is truly great. Never stop never stopping...Well I guess the awesome vibe from the Big C ride carried me through another CEA report….tumor markers are trending down!!!!!!!! It is not a huge jump as they have been but I expect as I go on this might be the norm. 1818 last month to 1632 is a good decline, at least I think so. So now I can breathe a little and keep pushing forward. It’s hard and so damn emotional but throwing my shit feelings down on this blog helps, so thank you for bearing with me. Yesterday I was so damn nervous, especially when I saw the doc approach me in the Lab. He did start out by saying he wished he had known about the Big C ride as he would have attended….that’s pretty amazing. Imagine if he would have seen first hand, how many people rode for friends and relatives!!! So anyway as soon as he approached me Kris run right up behind him….she had my back in case there was bad news. I guess now you can understand why I was so excited when she wanted to attend. But luckily the doc said I look good, my blood is good and now I know this stuff is working. He also said that he thinks my riding has a lot to do with my good trends, so I have another excuse to ride my bike. I wonder if I can deduct my bikes as a health expense??? Lol
Well I’m happy that this was a good week on my roller coaster of life. Now to plan a little farther into my future!!!
Dam, glad to head that buddy!Well I guess the awesome vibe from the Big C ride carried me through another CEA report….tumor markers are trending down!!!!!!!! It is not a huge jump as they have been but I expect as I go on this might be the norm. 1818 last month to 1632 is a good decline, at least I think so. So now I can breathe a little and keep pushing forward. It’s hard and so damn emotional but throwing my shit feelings down on this blog helps, so thank you for bearing with me. Yesterday I was so damn nervous, especially when I saw the doc approach me in the Lab. He did start out by saying he wished he had known about the Big C ride as he would have attended….that’s pretty amazing. Imagine if he would have seen first hand, how many people rode for friends and relatives!!! So anyway as soon as he approached me Kris run right up behind him….she had my back in case there was bad news. I guess now you can understand why I was so excited when she wanted to attend. But luckily the doc said I look good, my blood is good and now I know this stuff is working. He also said that he thinks my riding has a lot to do with my good trends, so I have another excuse to ride my bike. I wonder if I can deduct my bikes as a health expense??? Lol
Well I’m happy that this was a good week on my roller coaster of life. Now to plan a little farther into my future!!!
This is so great to hear, Frank!Well I guess the awesome vibe from the Big C ride carried me through another CEA report….tumor markers are trending down!!!!!!!! It is not a huge jump as they have been but I expect as I go on this might be the norm. 1818 last month to 1632 is a good decline, at least I think so. So now I can breathe a little and keep pushing forward. It’s hard and so damn emotional but throwing my shit feelings down on this blog helps, so thank you for bearing with me. Yesterday I was so damn nervous, especially when I saw the doc approach me in the Lab. He did start out by saying he wished he had known about the Big C ride as he would have attended….that’s pretty amazing. Imagine if he would have seen first hand, how many people rode for friends and relatives!!! So anyway as soon as he approached me Kris run right up behind him….she had my back in case there was bad news. I guess now you can understand why I was so excited when she wanted to attend. But luckily the doc said I look good, my blood is good and now I know this stuff is working. He also said that he thinks my riding has a lot to do with my good trends, so I have another excuse to ride my bike. I wonder if I can deduct my bikes as a health expense??? Lol
Well I’m happy that this was a good week on my roller coaster of life. Now to plan a little farther into my future!!!